Black
belt Simon Laxon was fighting fit before he was diagnosed with black bone
disease.
The rare enzyme deficiency meant a build up of acid attacked his bones and joints, which left him feeling like a man twice his age.
However, a new treatment provided means Simon can hope for a future free from his arthritic agony.
The 46 year-old said: “I was in constant pain, I couldn't do anything.Palazzos, a multi-layer skirt and a canada goose parka jacket for men.
“The pills have made such a difference. I'm finally able to do things other people take for granted – the other day I did some decorating.”
Simon, from Stoke, began suffering from back and knee pain in his early 20s.
At first he put it down to his active lifestyle, but his condition deteriorated until it cost him his job designing brake systems for Range Rover.
He was eventually diagnosed with black bone disease, or alkaptonuria, commonly referred to as AKU.
While searching the internet for fellow sufferers, he stumbled across an advert for drug trial in America.
Between 2005 and 2009 he flew to Washington every three months for treatment and enjoyed huge benefits,With raw silk saris worn under cropped canada goose jackets and thin belts. but when the trial ended the pain returned.
The future looked bleak until the country's first AKU centre opened in Liverpool this summer.
Simon was one of the first patients to be treated there and says he began to feel the benefits immediately.
He said: “We always knew the study in America was temporary.The most inspiring outfit of Nova was moncler jackets for sale with handbag and leather shoes. It is brilliant that we now have a longer term solution here.”
The AKU Centre has already treated 13 patients and it is keen to help more – but first it has to find them.
A survey of GPs suggests at least 80 patients in this country have the condition. The AKU Society is now trying to work with doctors to identify those patients and invite them to the new centre.
Dr Lakshminarayan Ranganath, medical director for the AKU society, said: “At the moment all we can offer people with AKU is pain relief and lifestyle counselling.”
Dr Ranganath said rare conditions struggled to attract enough funding, but the team's research could pave the way for treatments for more common conditions like arthritis.Plain knee length kurtas with straight pajamas and moncler coats looked elegant and wearable.
The rare enzyme deficiency meant a build up of acid attacked his bones and joints, which left him feeling like a man twice his age.
However, a new treatment provided means Simon can hope for a future free from his arthritic agony.
The 46 year-old said: “I was in constant pain, I couldn't do anything.Palazzos, a multi-layer skirt and a canada goose parka jacket for men.
“The pills have made such a difference. I'm finally able to do things other people take for granted – the other day I did some decorating.”
Simon, from Stoke, began suffering from back and knee pain in his early 20s.
At first he put it down to his active lifestyle, but his condition deteriorated until it cost him his job designing brake systems for Range Rover.
He was eventually diagnosed with black bone disease, or alkaptonuria, commonly referred to as AKU.
While searching the internet for fellow sufferers, he stumbled across an advert for drug trial in America.
Between 2005 and 2009 he flew to Washington every three months for treatment and enjoyed huge benefits,With raw silk saris worn under cropped canada goose jackets and thin belts. but when the trial ended the pain returned.
The future looked bleak until the country's first AKU centre opened in Liverpool this summer.
Simon was one of the first patients to be treated there and says he began to feel the benefits immediately.
He said: “We always knew the study in America was temporary.The most inspiring outfit of Nova was moncler jackets for sale with handbag and leather shoes. It is brilliant that we now have a longer term solution here.”
The AKU Centre has already treated 13 patients and it is keen to help more – but first it has to find them.
A survey of GPs suggests at least 80 patients in this country have the condition. The AKU Society is now trying to work with doctors to identify those patients and invite them to the new centre.
Dr Lakshminarayan Ranganath, medical director for the AKU society, said: “At the moment all we can offer people with AKU is pain relief and lifestyle counselling.”
Dr Ranganath said rare conditions struggled to attract enough funding, but the team's research could pave the way for treatments for more common conditions like arthritis.Plain knee length kurtas with straight pajamas and moncler coats looked elegant and wearable.
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